Carr has been disabled from age seven, owing to
arthrogryposis multiplex congenita, and has used a
wheelchair since the age of 14. She is frank about her life as a disabled person and the inherent comedy it brings: "I've had some tuts, which is fantastic... I look quite frail to some people, so it's like, 'She's talking about sex, she's swearing.' Every stereotype you didn't expect. People generally look terrified. 'Oh my God, is she going to be funny? Can we laugh at this?'" Carr became involved in politics, disabled rights, and activism while studying at the
University of Nottingham. Following her graduation she left law to work as a disability equality trainer. She has been a disability rights campaigner in the UK and has spoken at many rallies. In May 2008 she joined with
ADAPT, a prominent disability rights group in the United States, to raise money for it and to protest against presidential candidate
John McCain's position on a bill permitting Americans qualifying for Medicaid coverage of nursing home costs to instead spend it on home-based, or community care, making it easier for disabled people to remain in their own homes. In 2011, Carr was part of a
Newsnight debate on
assisted suicide, following the screening on the BBC of
Terry Pratchett: Choosing to Die, which included
Jeremy Paxman and
David Aaronovitch. She opposed
Lord Falconer's
Assisted Dying Bill, stating: "I fear we've so devalued certain groups of people—ill people, disabled people, older people—that I don't think it's in their best interests to enshrine in law the right of doctors to kill certain people." In 2024, Carr presented a documentary,
Better Off Dead?, advocating against assisted suicide. In 2025, Carr appeared at
Greenbelt Festival to share her reasons for believing that the UK should not legalise assisted suicide. ==Personal life==