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Interagency Autism Coordinating Committee

The Interagency Autism Coordinating Committee (IACC) is a United States federal advisory panel within the Department of Health and Human Services (HHS). It coordinates all efforts within HHS concerning autism spectrum disorder (ASD).

Mission
The stated mission of the Interagency Autism Coordinating Committee includes providing “advice and recommendations to the Secretary of Health and Human Services regarding Federal activities related to autism spectrum disorder.” Additionally, it coordinates “ASD activities among the member agencies and organizations.” with the intention to ensuring that efforts are not duplicative and that they benefit from cross-collaborative opportunities. The IACC offers a “public forum for discussions related to ASD research, services, and policy” which is held quarterly. The IACC Strategic Plan for Autism Research, Services, and Policy is released periodically, with the most recent released in September 2023 covering the years 2021-2023. IACC activities and associated cross-agency programs, policies and research are coordinated and managed by the Office of Autism Research Coordination (OARC). == History ==
History
Originally, the Interagency Autism Coordinating Committee was established in 2000 under the Children's Health Act. Its creation was brought about by "the efforts of the broad autism community’s work with Congress." The Combating Autism Act of 2006 reauthorized the committee and chartered it as a federal advisory committee. Additional reauthorizations occurred in 2011, 2014, and 2019. The Autism CARES Act of 2024 authorizes the IACC to continue its work until September 30, 2029. == Criticisms and controversies ==
Criticisms and controversies
GAO recommendations A November 2013 study of federal autism activities by the U.S. General Accounting Office (GAO) found that better data and more coordination was needed. GAO found that 84% of "autism research projects funded by federal agencies from fiscal years 2008 through 2012" may have been duplicative and that "IACC members provided mixed views on the usefulness of the IACC's meetings, strategic plan, and portfolio analysis in aiding coordination and monitoring." In 2017, GAO noted that the Interagency Autism Coordinating Committee has not collaborated with agencies outside the Department of Health and Human Services to support research for transition-age youth with ASD. They suggested that, "as a result, IACC may continue to miss opportunities to leverage the knowledge of other agencies." The GAO study on autism research and support services, published in February 2024, found that "although IACC strategic plans describe high-level progress made toward autism activities, they generally have not described how progress made relates to goals." GAO noted that despite HHS claims that "descriptions of how performance is lagging are provided in the IACC strategic plan," their study did not find those details "presented clearly for each IACC goal." Bias toward neurodiversity Jonathan Mitchell, an autistic advocate, has criticized the IACC's nomination process by claiming that it is too biased towards accepting neurodiversity. He points out that, as of the writing of his article in 2019, "seven pro-neurodiversity, anti-cure autistics were appointed." January 2026 appointments For over two decades, the work of the IACC was "sustained...by the dedicated service of leading scientists, advocates, and public servants." Autism Science Foundation (ASF) President Alison Singer, who previously served three terms as an IACC Public member, strongly disagreed with that official statement. She is concerned that, “the newly constituted IACC represents a complete and unprecedented overhaul, with no continuity from prior committees and a striking absence of scientific expertise” and that “members have been cherry-picked to reach a predetermined conclusion, not to seek broad, good-faith input from qualified experts and stakeholders.” Facilitated communication Facilitated communication or Spelling 2 Communicate (S2P) is an additional pseudoscientific idea promoted by a few of the new IACC appointees. A third member, Krystal Higgins, is the executive director of the National Autism Association which advocates facilitated communication and promotes possible links between autism and vaccines. ==Membership==
Membership
The Committee includes both federal officials and public stakeholder members. Federal officials are selected from the government agencies that work on autism related issues. Public members include "autistic adults, parents and family members, advocates, community providers, and researchers." Member agencies IACC member agencies within HHS are: • Administration for Children and Families (ACF) • Administration for Community Living (ACL) • Agency for Healthcare Resources and Quality (AHRQ) • Centers for Medicare and Medicaid Services (CMS) • Centers for Disease Control and Prevention (CDC) • Food and Drug Administration (FDA) • Health Resources and Services Administration (HRSA) • Indian Health Service (IHS) • National Institutes of Health (NIH) • Substance Abuse and Mental Health Services Administration (SAMHSA) Additional IACC member agencies external to HHS include: • U.S. Department of Defense (DoD) • U.S. Department of Education (ED) • U.S. Department of Housing and Urban Development (HUD) • U.S. Department of Justice (DOJ) • U.S. Department of Labor (DOL) • U.S. Department of Veterans Affairs (VA) • U.S. Environmental Protection Agency (EPA) • U.S. Social Security Administration (SSA) ==Further reading==
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