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Psychosocial distress

Psychosocial distress refers to the unpleasant emotions or psychological symptoms an individual has when they are overwhelmed, which negatively impacts their quality of life. Psychosocial distress is most commonly used in medical care to refer to the emotional distress experienced by populations of patients and caregivers of patients with complex chronic conditions such as cancer, diabetes, and cardiovascular conditions, which confer heavy symptom burdens that are often overwhelming, due to the disease's association with death. Due to the significant history of psychosocial distress in cancer treatment, and a lack of reliable secondary resources documenting distress in other contexts, psychosocial distress will be mainly discussed in the context of oncology.

Causes and Symptoms
Common causes of psychosocial distress include clinically related trauma, personal life changes, and extraneous stressors. The unsettling sensations experienced can cause individuals to respond to the stress in different ways, presenting psychological symptoms (e.g., excessive exhaustion, unhappiness, avoidance, dread and worry) that negative impacts an individual's well-being and quality of life. Such histological responses are linked to an increase in: • bodily inflammation • risk of strokecancer progressioncardiovascular diseaseinsomniainjury and suicidal tendencies These clinical health issues often further exacerbate the original psychological symptoms. Furthermore, digestion, metabolism and other crucial bodily functions may be slowed down. == Screening/Diagnosis ==
Screening/Diagnosis
Prior to 2014, the implementation of evidence-based distress screening in the healthcare setting was scarce. In 2014, to increase objectivity in distress screening based on qualitative data, the American Psychosocial Oncology Society (APOS) and Yale School of Nursing (YSN) collaborated to publish the Screening for Psychosocial Distress program, outlining the five steps- Screen, Evaluation, Referral, Follow-up and Documentation/Quality Improvement- to be carried out in psychosocial distress screening. 1. Screening The Distress Thermometer (DT) is an established self-assessment tool that invites patients to score their perceived level of distress during the previous week on a scale from 0 (no distress) to 10 (severe, intolerable distress). 39 different prompts classified as "Practical", "Family", "Emotional", "Spiritual", and "Physical" categories are utilized to evaluate the wellbeing of patients experiencing psychosocial distress. An average rating of >=4 points is regarded as significant, necessitating additional medical evaluation to determine the best course of medical care. 2. Evaluation The recommended practice is to periodically assess ongoing and recovered cancer patients for anxiety and depressive symptoms during the course of their care, according to the Pan-Canadian Screening, Assessment and Care guideline that is sponsored by the American Society of Clinical Oncology (ASCO). The Generalized Anxiety Disorder Scale can be used to evaluate symptoms of anxiety: a score of 0-4 implicates no symptoms, 5-9 implicates clement symptoms, 10-13 implicates moderate symptoms and 15-21 implicates severe symptoms. 3. Referral With reference to cancer patients in particular, in the event that typical management and treatment does not improve psychosocial distress outcomes, medical care professionals should provide patients with targeted referrals to mental health and social work institutions. 4. Follow-up Providing patients with follow up information, discussion and communication with their healthcare providers enables for further reevaluation upon the course of management or treatment that will be followed. Such communication also allows the provision of detailed patient-specific care. 5. Documentation/Quality Improvement All distress related patient information should be recorded in detail to reliably evaluate the course of the further action, according to the APOS Guidelines. == Distress Management (DM) ==
Distress Management (DM)
Psychosocial Distress Management (DM) is mandatory in oncology care for every phase of disease treatment, and it involves screening, assessment, triage, intervention and outcome monitoring. Each stage is personalized based on individual factors of age, race/ethnicity, sex, LGBTQ+, socio-economic status, physical/cognitive limitations, literacy, mental health/substance abuse history, as recommended by the APOS and Association of Oncology Social Work's (AOSW) 2021 consensus panel. These targeted referrals are made towards optimal evidence-based treatments based on the patient's specific psychosocial symptoms and individual factors, with adherence to the NCCN's 2020 guidelines. Evidence-based interventions are classified into 1st-line interventions and 2nd-line interventions, whose effectiveness vary depending on the patient's individual characteristics and symptoms. Outcome monitoring should be conducted to ensure treatment success. == Society & Culture ==
Society & Culture
Stigma of Distress Stigmatization of mental distress and illnesses is prevalent across many sectors of society. This stigma is driven by presumptions that the patient suffering is to blame for their mental disorder, the socioeconomic disadvantages brought by mental illness (e.g., insurance, hiring discrimination Some cultures (e.g., rural) promote independence and self-affirmation that deter patients from reporting symptoms and receiving treatment. Instead, alternatives such as religion and cognitive reframing (using prayers and narrative construction to encourage self-acceptance) are common coping mechanisms against distress. Hence, in cases where patients decline psychosocial support, educational materials should be provided, accessibility improved via advertising, and comprehensive care integrated in the normal disease treatment. == History of Psychosocial Distress in Oncology ==
History of Psychosocial Distress in Oncology
In the 1990s, under recognition, medical coverage, and treatment of psychosocial symptoms stemmed from heavy stigmatization of the term "Psychological Distress". As a result, the term "Psychosocial Distress" was coined in 1999 by the National Comprehensive Cancer Network (NCCN), as a means to differentiate between the two and destigmatize such discussion between healthcare providers and patients. At the same time, they released the first psychosocial distress guidelines, where early standards were set for distress management. However, adherence to these guidelines was lacking until in 2015, "Psychosocial Support" was officialized as a criterion in Commission on Cancer (CoC) accreditation by the American College of Surgeons (ACS), which raised universal recognition of distress. == Research directions ==
Research directions
Research is needed for psychosocial care models, care disparities (for vulnerable populations), mental-emotional-relational health, population health (with demographic diversity) and digital health interventions, according to the APOS Roadmap. In addition, there needs to be more research on how metastatic/advanced disease and demographic characteristics (e.g., gender influence) can impact treatment effectiveness. == See also ==
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